Approximately 10,000 children with rare or undiagnosed conditions attend the Royal Hospital for Children in Glasgow each year. The Office for Rare Conditions, based at the Children's Hospital and the Queen Elizabeth University Hospital in Glasgow, aims to raise awareness of rare conditions, enhance the quality of care provided and promote participation in multi-centre research.
Individually Rare, Together Strong
The Office for Rare Conditions seeks to develop a strong network of patient support organisations for people living with rare conditions. If you would like to discuss patient-related concerns or share your experience, please get in touch.
OFFICE FOR RARE CONDITIONS
Royal Hospital for Children
Zone 1, Office Block
1345 Govan Road
Glasgow, G51 4 TF
Phone: 0141 451 5899
Living with a rare condition can be very isolating due to the small numbers of people with each condition and a lack of knowledge and expertise regarding particular conditions. Support groups and patient associations bring people together to share personal experiences and can provide emotional support and practical advice to members.
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